Thyroiditis, APD, & gluten.
(Sonora, CA USA)
After searching through the forums and not finding answers I am asking for help. I have written before but I will give my past history.
I was on and off BCP at an early age because my periods were so heavy and I had ovarian cysts. I never consistantly used them because they made me sick. Finally at 18 I started them again because I was tired of having heaving periods and painful ovarian cysts. Now that I look back that was nothing compared to what I deal with now. My Dr kept changing the brand because they made me so sick and we finally started on Yasmine. She told me it was the best for ovarian cysts. At first it helped but within a few months I had painul, but not heavy periods again and I started developing stomach problems. I gained a bunch of weight even though I couldn't keep any food down. I went in for an ultrasound because I was having ovarian pain again and they discovered that I had a dark fluid filled cyst that needed to be removed. Also, during that ultrasoud they saw that my appendix was enlarged which normally can't be seen on a ultrasound. I had surgery to remove the cyst and my appendix. After surgery I could keep food down again but I got a very painful UTI. My Dr said it was from the surgery because an incision was made above my bladder. I was given antibiotics which helped the infection but the pain never went away. I should mention now that I was constantly on anitbiotics when I was younger because I always had strep throat and mysterious rashes that started just before I started menstrating. I also was diagnosed with a severe allergy to mercury and I had many amalgam fillings which I have had removed. For a few years I stayed on Yasmine and still sufferd with bladder pain, painful periods, rashes, hives, and painful intercourse. I was then diagnosed with Interstitial Cystitis. I tried NAET to clear my allergies and I almost felt normal again. I stopped taking Yasmine so I could get pregnant and did right away. Around 4 or 5 months I developed gestational diabetes and within a month I developed a rash wround my wedding ring. After I had my son I was given antibiotics and steriods to clear it up but it never completely went away. I was also tested for allergies to the metals in my ring but they all came back negative and I would get the rash even if I wasn't wearing my ring.
I got pregnant with my second when my son was only 7 months, but I was relieved because I had started menstrating again and I felt so much better pregnant despite the Gestational Diabetes. After I had my daughter I felt great! She was colicky so I had a real strict diet. I lost a bunch of weight and I just felt great. I started menstrating again when she was only 3 months old, maybe because I was hardly eating anything, but my periods were great. Light, regular and no pain. When my daughter was just over a year old I stopped breast feeding. I started working out more because I knew I wouldn't be burning as many calories. I then got a bad cold and within a few weeks I got thyroiditis for the first time. I gained 20lbs. in two months and felt awful. My periods were worse than ever. I tried for a couple years to get better, but with no luck. I even tried progesterone cream, which helped at first but I wasn't using enough and got worse. Suddenly I felt better. I soon found out I was pregnant again. During this pregnacy I felt great but I developed painful, bulging viens and it was difficult for me to keep my blood sugar levels balanced.
After my third was born I had a tubal and my bleeding never stopped. I also had large clots and the flow was full of mucous. My Dr. kept telling me to give it time, which I did but I never got better.
He did an ultrasound and found nothing abnormal. I went to a homoepathic dr and they ordered a complete hormone panel and it found that I was estrogen and testosterone dominant.My FSH was also low and my cortisol levels slumped in the afternoon. I am not sure how to read the tests but it also looks like my LH dropped drastically after ovulation. She didn't believe in using hormones so I went into debt purchasing herbs that were suppose to balance my hormones but nothing helped. My bleeding finally slowed when I stared menstrating again, after around five months after I gave birth, but even then I only had few days during the month that I wasn't bleeding. I also gained 20lbs and got horrible acnce and another mysterious rash on the back of my leg where I had had a heat rash when I was younger. I went back to the Dr, a few actually, and they all wanted to put me on BCP. I said no so they did lots of blood work. The only thing they found that was abnormal was my esinophil count/percentage which was high. More tests, allergy and parasites, all normal. I then went on an ellimination diet and everything got worse... rashes, labor-like mentrual cramps, acne, and I started having gall bladder attacks hours before I would start my period. I went off the diet and felt a little better.
Then I found your site.:)I started the cream (200mg)and my rash on back of my leg immediately went away (but not the one on my finger). I was feeling better. When I went off of it to have a period I got the rash back and felt awful. I wrote you and stared using Natpro continuously as you suggested. I finaly had a normal cycle. But then after a month I started feeling bad again. I developed fluid in my right ear (new symptom) and my rash on my leg came back so I started increasing the dose of Natpro. I continued to get worse even though I continued to raise the dose up to 1000mg/day. I wanted to quit but then read some posts on the forum and decided to raise the dose again to about 1500mg/day and I completely cut out gluten. Within 48 hours the rash on my finger was so bad that it was bleeding constantly and I developed thyroiditis which was so painful that I couldn't even move my neck. I kept using the Natpro for a couple days but I wasn't getting any better so I stopped. Within 12 hours my thyroiditis was gone and the rash on my finger cleared up.
I had a little spotting but not bad. So far my symptoms haven't worsened but it has only been a week. I have read that progesterone can trigger Hashimoto's if the dose is too high. I have been tested before many times and nothing abnormal. My Mom is Hypothyroid. I am not sure what to believe.
I also read about Autoimmune Progesterone Dermatitis and it sounds like I have a lot of the same symptoms. Before starting the Natpro my periods were all over the place but it did seem like my rash got worse just before bleeding.
I also read that if you have an autoimmune disease that something like gluten or smoking cigarettes can depress your immune system so it lessens your symptoms. Do you think that is why my rash on my finger comes back worse after cutting out gluten? Like I said before I'm not sure what I should believe. I trust you but I am worried that I am allergic to progesterone. I was diagnosed with a progesterone allergy through muscle testing and was treated and Natpro did seem to work better after that but I was told that a high dose of progesterone can make you allergic again???
And... I have also read about Post Tubal Ligation Syndrom. But then again I had a lot of the symptoms before my tubal. They just got worse. Honestly I think they are all attributed to being deficiant in progesterone at a young age and then the BCP made it worse. Including the heavy antibiotic use and amalgam fillings.
I am sorry that I have gone on and on. I just want to give you all the information (actually I am sure I left something out). Any advice is greatly appreciated. FYI I take IntraMax liquid vitamins and extra vitamin D and probiotics. As of right now I am not using the Natpro. I just ordered a huge shipment but now I am terrified that the thyroiditis will come back. (I forgot that I tried Armour a couple of times but I had heart palpitations. Told you I would forget something;) Please help. I am only 32 years old with a 6, 5 and almost 2 year old. I need my health and my energy. You have already helped me so much. Thank you, thank you, thank you!