Thank you to Paige, Kaylana, RJ, H, and Joy!!!!

by Renee
(United States)

Dear Paige, Kaylana, RJ, H, and Joy,

I hope this is where I am supposed to respond! I'm not sure how to navigate the site yet. If this is not correct, please advise or move this to the appropriate location.

First, I have to say that I was blown away by all of your responses. Last night, I woke up in the middle of the night after having a nightmare. I woke up gasping, and immediately turned on all the lights!!!

Then my phone chimed several times. All of your responses came at the same time.
I looked at the phone and when I read all of your kind, thoughtful and encouraging supportive messages to me I actually shed tears.

All of your messages came exactly at the right time and they were all wonderful. They immediately made me feel better and not so alone in this battle.
You all gave me such great information and articles to read. Thank you! This weekend I am going to dedicate some time to looking into everything you said/sent.

I am just bowled over. I’m so grateful that you all took time out of your day to write to me and give me advice and support.

Paige, I am so sorry to hear that you had another panic attack and that the progesterone cream isn’t working. I’m hoping that, like RJ said, fussing around with the dosage might help you. I am really hoping it does. You will have to let me know because I just ordered some from a company in the United States and it’s on its way to me. RJ, thank you for all your wonderful advice. I have a lot of information to digest!

Joy, thank you for all the articles. I will read them this weekend. Kaylana, your message gave me hope that I will feel normal again. Actually, all of your messages gave me hope. H, yes, the 1000 calories doesn’t seem like much (although I admit, I’ve been so sick and nauseated that I haven’t had much of an appetite at all and sometimes it’s a struggle to even get 1000 calories into my body), and I will increase it a bit with more protein. I pretty much cut meat out of my diet with the exception of salmon and tuna. I cut out all soda and cut way back on sugar intake and carbs and dairy. I also bought a recumbent bike for exercise.

Yesterday, I went for my first acupuncture session. The actual work she did on me didn’t do much for me, but she said I need to go back a few more times. She is focusing on anxiety and PMS with me.

I am probably not going to be able to answer everyone’s questions of me in this message, but let me include a little more information about me.

Last month when I ended up at the doctor with panic and PVCs, the doctor sent me for bloodwork. I did not get a copy, but her assistant called to tell me that my TSH was "still low" , (I became HyPERthyroid) so my doctor decided (finally) to lower the synthroid from 125mcg to 112mcg. I told her I wanted it lowered more, and her response was to "just stop taking it altogether". I think the Dr. was upset with me for demanding that it be lowered more. (I will admit, I have a lot of anxiety over not having ANY thyroid meds at all after taking the medication every day for over a decade. I’m afraid I will go hypothyroid again.)

She also told me that my Vitamin D was "a little low" and to supplement each day by taking 2000 iu. I have opted instead to take 5000iu based on Joy’s advice and from what I've read. Joy….she didn’t tell me exactly what my level was. I am going to ask for a copy of my bloodwork.

She said every other test came back normal (at least that’s what she told me over the phone). My cholesterol, blood sugar, Vitamin b-12, etc. were all fine. She also tested me for Lyme disease and it was negative.

I have been supplementing on my own based on what I have read.
I take: Ultimate Omegas High Intensity Omega 3 (I’ve been taking these for about 3 years, and I
eat a lot of wild caught salmon)
Multi-formula that includes Calcium, Magnesium and Zinc
Selenium 200 mcg per day (or I eat 4 raw Brazil nuts when I buy them)
Vitamin D3 (doctor told me to take 2000 iu per day, but I am taking 5,000 iu per day now)
Turmeric (I’ve taken this for years)
Ashwaganda (just started taking it in the last few weeks)
A formula called “heart calm”, which has Magnesium (elemental), Potassium, Taurine and Coenzyme Q10 (just started these since having the PVCs.)
I get folic acid and Vitamin E through eating sunflowers seeds every day. I put about a tablespoon of them on my spinach salad every day.
I ran out of Vitamin C (have to go buy more, but I take 1000mg per day. If I don’t take a pill, I usually have a pink grapefruit or tomatoes in my salad.) I probably should increase my Vitamin C. I don’t think I get enough.
I give myself shots of Vitamin B-12 sometimes. I’m supposed to give myself a shot every month, but I do it once every three or four months. It’s synthetic, prescribed by my doctor, so I don’t know if I completely trust it. I just try to eat well.
So, that’s a little more about me. I wanted to respond as quickly as I could to everyone.

I feel so blessed that I found this website. You all seem like a group of caring, kind and supportive women. I’m glad I found you. And, thanks to Wray for the website! Take care and be well. And thank you again!

Comments for Thank you to Paige, Kaylana, RJ, H, and Joy!!!!

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Feb 17, 2016
Thank you to Paige, Kaylana, RJ, H and Joy!!!
by: Joy

Hi Renee

Oh what a lovely post Renee and thank you for your kind words. It is extremely emotional and uplifting when you find that there is help out there, help from people who are all suffering from virtually the same. It is terribly sad that we have to take our health into our own hands because of information given by, at times, uncaring and misinformed people. I am pleased that I have been able to help you in some small way. Sometimes all it takes is for someone to listen and tell you that you are not going nuts, that what you are experiencing is not little voices in your head and often people telling you that you need to be admitted into a psychiatric hospital. All it takes is for ONE person to understand.

Now you mustn’t get me blowing a fuse here regarding the subject of not been given your test results, or being told that your tests are normal, or fine …… what exactly does that mean? It is your right to have your tests, you paid for them. Once you have them, compare them to the correct results found on the Hormone Testing page on Wray’s website.

Onwards and upwards Renee, you can do it. It is never an overnight fix though, please understand that.

Feb 17, 2016
Thank you!!
by: Paige

I am so blessed to open your message this morning and wanted to say thank you so much! I woke at 3am (something that has become the norm lately), but woke up feeling ok. Then at 4am, while lying in bed reading, the nervous, jittery, anxious feelings started creeping in along with the shortness of breath (which I despise). I took my progesterone cream, GABA and L-Theanine to try to calm down and it's so far helping get the edge off and I pray that it just goes away and stays away so I can function today. I wish we lived close to each other to meet for lunch and offer support to one another, it helps so much having another person who understands that you aren't a hypocondriac or its just all in your head. I completely understand how you feel and wish there was some magic pill that would wipe out all of these symptoms so we could feel normal again. Have you noticed that your symptoms seem to get worse at a certain time? I am usually horrible 2 weeks before my period, but have had a hard time during and right after my period as well. So no real definite times, its all over the place, but definitely 2 weeks before my cycle for sure. I am not sure if we are allowed to share our email on here but I would be more than happy to offer support, even if it just means to lend an ear, I know that just venting helps during these trying times. I have been going to my church and sitting there sometimes just praying (and at times crying) when I am having a really hard time. I seem to be so emotional in this period and its embarrasing at times, I have even bought waterproof mascara and keep tissue with me at all times because I will tear up or cry at nothing it seems. Well, I'm rambling here and sorry for the novel, I appreicate your message more than you know and you helped me this morning by reminding me that I am not alone in dealing with this. I am also wanting to try accupuncture. Please keep me posted on how it goes and if it is helping you. Take care and I will be praying for your speedy recovery in this as well

Feb 18, 2016
Thank you!
by: Joy

Hi Paige

Lovely message to Renee, thank you. I think you have my email address Paige, or we have connected via my Facebook page? Are your vitamin D3 and magnesium levels where they should be? Please get in touch.

Take care.

Feb 19, 2016
Vit D/ Magnesium Levels
by: Paige

Hi Joy,

Thank you, I feel like I have a new family here since going thru this awful time. This forum and you ladies are so comforting. I honestly don't know what I would do without you guys! My Vit D levels were low (47)I am upping my dose to 8000 Iu's daily. As for magnesium levels, my general doctor absolutely refused to test them for me when I asked. She said she wasn't concerned about that at this time and it was an "unnecessary test". Can you believe it!? I am looking for another doctor right now. In the meantime, I take 300-400mg daily for magnesium glycinate, hoping to keep my levels stable until I know what is going on. Again, so many thanks for you and the ladies on here, you keep those of us sane when things are falling apart and when our doctors are clueless.

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