Hair loss, chronic fatigue and spironolactone are killing me
I started noticing that my hair was thinning over a year ago. I had also been experiencing intense heart palpitations,chronic fatigue, heavy clotting periods, night sweats, insomnia, acne, oily scalp, folliculitis, numb extremities, dizziness, and brain fog. The hair loss finally sent me to the doctor. The dermatologist ran tests. Androgens were normal, ferritin was 9; he put me on iron supplements and 200 mg. of spironolactone daily. I wish I hadn't started it. I ended up flat on the couch all summer, depressed and exhausted; having 2 long light periods a month. I ended up stopping the spiro. two months later. Not much happened at first, then a month after stopping, my kinesiologist ran tests and found that I had almost no progesterone, low estrogen, low DHEA, low testosterone, low Zinc, vitamin D, etc. He started me on a thyroid supplement. My hair loss exploded, over 200 hairs lost just in the shower. I quit the thyroid supplement and the loss calmed down. Then he gave me DHEA. The same hair loss scenario began all over again. I quit the DHEA and it slowed. Then I went to another doctor who gave me a shot of estrogen. The same hair loss nighmare began again with a vengeance. I panicked when I looked at the top of my head in the mirror and went back on spiro. The hair loss slowed, but never stopped. Little hairs began to grow again. After being back on spiro. for about three months, the hair loss began to increase. I tried homeopathy. My hair began to fall out in handfulls. I quit the homeopathy and the spiro. Everything got worse...Went back on the spiro. and it slowed. My hair loss stopped briefly in early June, thought it was over. Went through a stressful epidsode and it started again. I've been on spiro. for about four months and my hair loss is increasing. I also have a burning scalp that drives me insane.
I've tested negative for PCOS and for thyroid issues. I've always been thin and have had multiple miscarriages, although I have three healthy children also. I'm 43 years old but feel like I'm 80.
I go through sleepless nights and I'm exhausted and depressed all day. I've tried everything, including natural progesterone cream. I didn't last long on it, as I started getting acne and oily scalp back.
My doctor thinks that progesterone will be converted into androgens in my body and she gave me some natural estrogen. I'm afraid to take it. Three doctors have perscribed birth control pills, I haven't filled the scripts. Several have perscribed anti-depressants - still considering that. I recently came up with a positive rheumatoid factor test and elevated ANAs. I am vitamin A deficient. I take B complex vitamins, biotin, B12, C, selenium, zinc, E, turmeric, ginger, green tea, etc. I have been gluten free, sugar free, caffeine free since last year. NOTHING has helped. I had a scalp biopsy done. It was inconclusive, although they are leaning toward androgenic alopecia. I have no genetic family history of that, but I have miniturized hairs and am losing my frontal hair line.
I used to have waist length, wavy, blond hair. I now have frizzy, thin garbage on my head. I bought a wig, but I hate it.
I feel awful all the time and would rather not live than continue like this. If anyone has any suggestions, please send them my way. I want to be off the spiro., but I don't want to go bald. Every time I've tried quitting, I've lost a ton of hair, and no new hair grows.
I've been to every doctor imagineable, including naturopaths. All are stumped and I'm sure would like to get rid of me - I remind them of their inadequacies.
I went through 5 intensely stressful years prior to all this happening. Is there any hope for me? I'll order the cream and maybe I'll try it - maybe not.