Progesterone ruined my life-am I facing hysterectomy now?
Hello Wray (I don't know if you still check this forum at all or not). My name is Maria and I talked to you a few times on this forum. I was the person with Peripheral Thyroid Resistance who had a very severe Estrogen Dominance and was asking for advice two years ago. Could you please respond if you see this.
I have followed your advice to the T as much as we could possibly afford (including me taking every supplement recommended, DIM, Calcium D-Glucarate, Magnesium, Vitamin D, NAC- you name it), and was on very high doses of progesterone daily for pretty much entire 2 years. This still did not completely resolve all my symptoms like swelling and hot flashes. The highest dose of Progesterone I was on for the last 6 months was literally a jar of Ona's 10% progesterone cream a day (which is over 10000 mg, a horrifying amount). For two years, it was nothing but battling constant hot flashes I never had before, swelling, fibroids that did not bother me before starting on progesterone, I even had a surgery to remove a very large fibroid. I was still having hot flashes a few times a day and steady swelling after waking up each day by 10 lbs at least daily, but I was more or less functioning, albeit barely. Unfortunately, when my husband lost his second job, I was forced to stop Progesterone Cream cold turkey which ended up in me having blood pressure above 200/120 (like what my Grandmother had before she died of a stroke), made me swell from 122 lbs to 140 within less than 3 weeks, made most of my hair fall out, it's basically hell like I have never known it and it continues progressively. I have been off progesterone cream now for a month and there is no end to this nightmare. I continue to progressively swell, none of my clothes fits me anymore (I went from Small to Large size within 20 days), my stomach is severely bloated, my fingernails are peeling, I can't stop having random bleeding and spotting episodes, and have almost constant pelvic pain.
At this point, there is no way back (we cannot afford such amounts of cream as we did before) and there is no way forward even if I manage to find a way and use these enormous amounts of cream as I did before, I still exhibit estrogen dominance, which over time causes gynecological issues, and still causes swelling, pain, and forces me to constantly, every hour on the hour, apply the bloody cream, which never absorbs entirely no matter how long I sit naked in the bathroom, and every morning I still would wake with hair falling out, my breasts hurting and an unrelenting hot flash that doesn't end until I get up extremely early to apply more cream-and so on, and so forth.
We are extremely poor (my husband's entire paycheck used to go to JUST the Progesterone Cream for 2 years in an attempt to cure me from this mysterious Thyroid Resistance I had for 10 years that made me fully disabled and made me lose all my teeth), I was stupidly hoping to fix at least the high estrogen so I could have a fool's chance to one day have a child ( I had years of infertility and a failed pregnancy before), but now I'm 39 and a complete wreck after trying the cream which actually made me much, much worse.
So ultimately I am facing the only choice I can make, considering our income, my condition, and the fact that cream or not, I simply can not stop the Estrogen being dominant-to have my ovaries out, give up the hope to ever have children, because as I assume removing the source of Estrogen entirely is the only way for me to use Progesterone within our budget and actually make it a dominant hormone.
Considering the situation and the amount of pain I am in after diligently following your advice, could you please respond and let me know if there are any other possible sources of estrogen besides the ovaries, are there any abnormalities or estrogen producing tumours I need to know about or look into before I make such a drastic decision, and whether a hysterectomy reduces the amount of progesterone needed to overcome estrogen? It feels like I have an unlimited source of estrogen that never yields and never stops producing it (in fact when I use a lot of progesterone cream, my ovaries ache in what I believe an attempt to make more estrogen, judging by the worsening symptoms. Nobody told us of the huge amounts I will need, and there was never a hint that anyone ever takes such doses, so now I'm trapped. Please respond; thank you very much. Maria