(Los Angeles, CA, USA)
Hi Wray and fellow hormone sisters,
I'm 42 years young. I was "accidentally" diagnosed with Endometriosis when I went it for surgery for a cyst on my right ovary, and adnomyomas (or is it adnomyoma?...I can never get that one right).
Anyway after being told I have stage 4 Endo I cried and cried some more, then cried a little bit more and finally pulled myself together and started to research a heck of a lot. Thus finding this amazing site.
I knew my options, and my gyno/surgeon also discussed them. ie Lupron, hysterectomy, going back on the pill, even getting pregnant might help. She also mentioned bio-identical hormones which I knew a little about from Suzanne Somers endorsements.
So I decided the least extreme choice would be progesterone cream. She prescribed me 400mg per of the cream from a compounding pharmacy. To be measured and taken vaginally. She advised that that is the best way since I have endo, we should target it as close as possible.
That was about 4 months ago. I tell you the difference was NIGHT AND DAY. No more pain, (very little), so much more energy, no more brain fog, and better moods, no more getting constantly sick and getting cold or flu. I was born again. I have to admit that the first month was awful but I read to expect that because the progesterone will "wake up" the estrogen receptors. But to hang in there and the cream will kick in and do its job. Which I can happily say it did exactly that.
Then recently I noticed that all familiar fatigue rearing its ugly head. And I remembered reading in various places that if you have Endo you should ideally start on really high dosage such as 800mg per day to really attack the estrogen load. I also read (I think it was an article by Dr. Lee) that women with endo should ideally not have a break from the cream for a period for at least the first 3 months. So last month I asked my doc if I could use it constantly and she said that would be fine because its a completely safe product to use. She told me to keep a diary of what anything I notice and I'm to see her in February.
At my last appointment I also asked her if she could prescribe me 800mg instead of 400mg because of the endo and she would not prescribe more than that because she said 400mg is the highest dose she can give me.
I did not realize there is a regulation on this cream. If there is where are the guidelines listed? The FDA has not approved this cream so I'm confused.
I'm tempted to go to another doctor and get an extra 400mg from them. But at the same time I think I should be honest with my doctor and I don't really want to start self-medicating without at least some communication from a professional.
But I can feel the cream is wearing off. Does that happen with progesterone cream. I read on some blog this woman who was very anti-bio identical progesterone cream and claimed that it does lose its potency(from her experience and other peoples testimonies)and many women become disillusioned by the cream. She also claims that because of this the result is that your estrogen levels get even higher and stronger.
So is that what's happening to me? Is my 400mg wearing off? And if I tried to get an additional 400mg from a second compounding pharmacy would that have adverse reactions because they may use different ingredients?
All I know is that last night I added an extra 200mg (600mg total) and I feel amazing again. But if I keep adding and then after another 3 months it wears off then I add more and so on...is it just a viscous circle.
I hate my endo. Since I had the diagnosis at least I know I have not been crazy all these years, but that doesn't change the fact that I still suffer from this damn disease.
Also on a side note since taking it constantly without a break I have very lightly bleeding e-v-e-r-y- day for the last 6 or 7 weeks. I read somewhere that Wray said that you should increase the dosage of the cream to stop that.
But I have information overload and I'm not sure which direction to go. Getting a little confused and lost about all of this. I just want a normal life with no interruptions because of fatigue and pain.
Thank you for taking the time to read my story. I hope some the information can help others into feeling like you are not alone if you have the same experience/symptoms as me. I think information is power and communication can help discover solutions.
Sorry if this was a bit long.