C-Section, Fibroids, Myomectomy, Hysterectomy & now this - Please help.
Hello, I am new and only beginning my journey and hope to gain some knowledge, wisdom and facts to help me and help my doctors. I hope someone will be able to help me as there is so much information out there it can be a little overwhelming.
My story is this ( a little long but I will try make it a short as poss): Age now: 42 Occupation: Dance Teacher, Married with 3 year old girl. From UK.
Fell pregnant naturally in May 2011 (age 38) & 3 months later was told I had a large fibroid growing with my pregnancy that would make it impossible to deliver naturally due to placement. Until then, I never knew about Fibroids! The fibroid grew to 17cm diameter during the pregnancy and I had a c section. they didn't remove it then due to risk factor. 3 months later, was prescribed Esmya to try shrink it prior to myomectomy which I had in August 2012. Felt fine & recovery was fine.
Feb 2013 went to doctor as feeling tired, depressed and not my usual self - thought it was just having a small baby.
Blood tests: FT4 10.6pmol TSH 2.92mu/l FSH 4.1iu/l
Prog 33nmol Vit D48nmol
Doctor said all result were normal apart from Vit D and was told to take 1-a-day Vit D supplement. Was also prescribed Zoloft anti depressants which I took for 2 weeks and stopped as I didn't like the effects and felt that I was NOT depressed rather that there was something else wrong but not sure what.
Feb 2014 went back to doctor as I found a lump in my lower abdomen which I was sure was a fibroid and had symptoms as before - pressure, needing to urinate a lot and periods became heavy and constant back ache. Was referred to consultant who did MRI and confirmed presence of 2 fibroids, 1 3cm and one 5cm. Due to previous history and rapid growth of the fibroids I was advised hysterectomy. Again was put on ESMYA for 3 months to try shrink them before surgery. Again, this didn't work and had hysterectomy in June 2014. Was referred to Haematologist & Endocrinologist in July 2014.
Test results: FT4 11.4pmol No TSH taken FT3 3.44pmol FSH 6iu/l Prog 1.5nmol
Estradiol 31.5pmol (I specifically asked for FT3 & FT4 - although he didn't want to take this initially)
After a good recovery of hysterectomy and feeling much better in myself and physically in December 2014 I had what can only be described as extreme PMS with horrible mood swings, terrible bloating and water retention, breast tenderness and swelling like I never before and just feeling very agitated and low. This state lasted a whole month. However looking back, I started having bouts of hot flushed in around November 2014.
I read up on my symptoms and thought I may have prog deficiency so managed to get some Natpro which over the course of 2 weeks eased my symptoms and I actually lost some weight too that I had struggled to lose for 2 years. However, I stopped when the tube ran out.
Back to the doctors in March 2015 and told her all my symptoms as they had returned end of January but worse and more constant than before & also including low libido and feeling very tired, low and generally not feeling 'normal'. She wouldn't take FT3 as she said it was not necessary and also wouldn't take Progesterone as I'd had a hysterectomy so was also not necessary.
Blood test results: FT4 12.6pmol TSH 2.39mu/l FSH 50.5iu/l Estradiol 164pmol Vit D 114nmol
Was called back into doctors and have been referred to another gynaecologist/endocrinologist as she cannot make sense of my results. She admits there is a problem & I was right in coming to her however as I am only 42 some of my results shouldn't be what they are. My consultant appointment is only in 6 weeks time and I feel like I can't continue to feel like this any longer let alone wait for 6 weeks but I don't have a choice in getting an earlier appointment unless I go privately.
So... that is a very long story and I hope someone can help me make more sense of it as I feel I am a little over whelmed with all the information I have and not too sure what to do now.
I have ordered some more Natpro in case I should take it again but wanted to get some advice first.
Thank you for reading & for a wonderful place of information.