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Candy

by Candy
(Alberta canada)

I have a 8 year old girl who has daily seizures. There is no treatment left to try for her except brain surgery the Nero dr tells us. We have tried all meds and diets with little help in controlling seizures... She has started to get a few pubic hairs and has acne. So we are wondering if she has a hormonal problem and if progestrone cream could possibly help with all her issues. Any advise on using it and how much to use would be apreciated. Thanks

Comments for Candy

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Jul 11, 2014
 CANDY
by: Deborah

Hi Candy

I'm so sorry about your daughter! I can't tell you about the progesterone for the seizures (but Wray or Joy certainly can - and I bet it can help) but I've been reading a lot about magnesium lately.

Here are some links to browse:

Mg Water

PubMed: Mg & seizures

Dr. Sircus: Magnesium in Neurological Diseases and Emotions.

Please read up on this, and if you do decide to try magnesium, get magnesium CHLORIDE hexahydrate for transdermal (on your skin) application; this is what is most effective.

Also do some research on coconut oil.

There's more to read but I don't want to overload you. Keep doing some research, and if you get coconut oil, please google Dr. Mercola and read his whole article on what to look for in a coconut oil.

Dr. Carolyn Dean is the expert on magnesium - google her and see what kind of magnesium she recommends.
Jul 13, 2014
 Seizures
by: Joy

Hi Candy

I am so sorry to hear about your daughter. Progesterone benefits the young and old, male and female and is vital for every living vertebrate. It has helped so many suffering from TBI and I feel that your daughter would benefit greatly from progesterone therapy. Please read the page on Epilepsy, it may help you to understand how it works. Oestrogen Dominance and How to use progesterone cream will also help you.

Your daughter’s hormones are also all over the place, hence the pubic hair and acne. Please cut back on all sugar, in fact carbs in general are causing problems. You might like to try the Ketogenic Diet, if you have not done so already. Again progesterone will help as it will balance the hormones. If you do consider trying progesterone please understand that it is not an overnight fix and can take anything from 2 to 6 months, possibly longer before some positive signs are seen. Also important is to use a progesterone cream with the correct progesterone concentration .

A Vitamin D deficiency also causes seizures, plus seizure medication destroys vitamin D, has anyone checked her level? It could be it's low after all the medications that she has been taking – see here and here . A deficiency also reduces the benefits of progesterone and is connected to every single cell and it’s formation in our bodies, making it vital.

I hope this helps you.
Jul 14, 2014
 Any other suggestions??
by: Anonymous

Thanks for all the help. We have tried ketogenic diet 2 times but it works for about 10 months and then it's like her body shuts down from all the fat over load. She gets tired, can't handle the food anymore and seizures once again increase.
We have checked vitamin D and she is at 35. They tell me this is not low. I don't know but she does take vitamin D drops daily as it was recommended for her. I have tried 400 mg a day of Magnisum in form of tablets but it didn't seem help either. Haven't tried the rub on Magnisum yet but will check into it. She was taking coconut oil daily as to have better ketosis while on Keto diet.

I will keep applying the progestrone cream as I don't think it will hurt her?? If anything maybe it will calm her down so she is not so hyper all the time.
Jul 15, 2014
 Any other suggestions?
by: Joy

Hi Candy

Is the coconut oil that you are using MCT oil as this is what is needed. MCT oil (medium chain triglyceride) is a wonderful source of energy which is not converted to fat, but can be used directly by the cells for energy, take 5-60ml/day. It's extracted from coconut oil, which can also be used specially for cooking. MCT is 60% caprylic acid, which kills candida, and 40% capric acid.

Your daughter’s Vitmain D level is way too low, it should be between 70-100ng/mL. The Hormone Testing page may also help you. Please continue with progesterone cream.
Jul 15, 2014
 HYPER ALL THE TIME
by: Candy

Hi Candy again

You mentioned that your daughter is hyper all of the time; in one of the articles that I sent it says 'When magnesium deficiencies occur--and there are a number of reasons why this can happen--there is no regulation. Among the dangerous results of this state listed in medical literature are heart damage, osteoporosis, periodontal disease, and epilepsy. Another is hyperirritability. "A great many people have a magnesium deficiency manifesting itself in hyperirritability," Barnett said. These people may often have a metabolic rate 125 percent higher than normal, he says.'

That article also says 'The first step in treating the symptoms of magnesium depletion, especially among children, is to eliminate milk from the diet, according to Dr. Barnett. He reports that nine out of ten childhood epileptics drink milk. Calciferol (synthetic vitamin D), like fluorine, tends to bind the magnesium, he says. Milk is loaded with this substance and therefore enhances the problem. The synthetic form of the vitamin is 10 times more active than the natural form--which means it is 10 times more potent in binding magnesium. For this reason the natural vitamin, as found in fish liver oils, will not cause magnesium depletion, but milk can and does.'

Definitely look into the transdermal oil; read Dr. Sircus (I sent a link to one of his articles) and Dr. Carolyn Dean.

Dr. Sircus' site has a comment 'We have had reports of people with seizures using magnesium oil and the seizures have diminished or stopped.

Our research has shown us that in the past some doctors have used magnesium even in difficult or intractable seizure disorders and the seizures have stopped.

We recommend using magnesium chloride applied to the skin instead of taking magnesium orally..its much more effective that way.

Please read : http://blog.imva.info/medicine...

Whenever I read an article, I also find it really helpful to read all of the comments that people have sent; a lot of times, they can really round out the advice given in the article.

But definitely read these two peoples' sites - they really have a treasure trove of information, just like this site!

What would we do without people like Wray and Joy..... : )
Jul 15, 2014
 Thanks for the help:)
by: Candy

I do have both coconut oil and mct oil. What I did was 1 cup mct and 1 cup coconut oil and mixed it together and would give her 2tsp at breakfast, 2 tsp supper. I will continue to give vitamin D drops. Any suggestion on amount?? She gets 6000 iu a day. She is almost 9 years old. So I will give her omega 3 with mct oil, a b complex Magnisum applied in a gel form (I have tried on the bottom of her feet) and progestrone 3 xs a day. I use the cream on the inside of her arm. Thanks for the help and please if u have more suggestions let me know:)
Jul 15, 2014
 Thanks
by: Candy

Yes I give her mct and coconut oil mixed. About a 1:1 ratio. She also takes about 6000 iu of vit D a day. Also she takes a B complex, omega 3 and Magnisum. Just can't seem to get any relief from all the seizures. Do u think seizures can get worse on progestrone cream and then get better. She is getting worse by the day and started cream July 10 with her?? Also how much vitamin D would u recommend?? Thanks for the help:)
Jul 16, 2014
 Thanks
by: Joy

Hi Candy

Mixing the oils is fine, but what you are giving her is only 20ml of oil per day. She needs to get at least 50ml. The keto diet is not low oil, but very high oil. Your daughter needs to eat 80% of her calories as fats/oils and the remaining 20% should be protein and carb. Perhaps you could try making your own mayo using MCT oil. I also think that it is best that you can get hold of someone who can advise you on the correct ratios.

As your daughter’s vitamin D level is very low, I suggest that you increase to 10 000iu’s per day for 3-4 months and have another test and take it from there. Once you reach the level that is should be, you can reduce to 5 000iu’s per day.

Things can get worse when using progesterone for the first time and if not enough is used, once the correct amount is used and progesterone becomes the dominant hormone, things should improve. Please also remember that progesterone therapy is not an overnight fix, it can take 2 – 6 months, possibly longer depending on how severe symptoms are. Your daughter has only been using the cream since July 10.

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