I have catamenial epilepsy (seizures focusing on the week before and during ones cycle) and am concerned that my hormone levels may be preventing me from gaining control over my seizures. I will be going to the doctor in a week and I am afraid that he will just want to up my meds more. If my doctor refuses to assist, would it be safe to treat myself. I have read that hormone changes can affect the AED medication levels.
I have a mirena which emits a small amount of progesterone. I have found that while I am on the mirena my seizures are much less frequent. It may be because it pretty much eliminates my cycle, or it could be the progesterone helping. This phenomena is the reason I believe that progesterone will help me.
I have also been told by family that hormone therapy would be very dangerous as well as having terrible side effects. Is this true? Thanks.