So happy to have found this thread!!!!
Hi everyone! I'm 33, finished nursing my third child at the end of December. I was waiting for my period to start once my milk dried up but instead I got my first ever grand mal on Jan-15..and my period the next day.
CT and MRI clear. Bloodwork/sugar fine
Grand mal with a concussion. All bloodwork fine. Started lamotrigine. Ovulation?
EEG-low waves in temporal lobe
No period, no seizure
Apr-29, May-22, Jun-27
Meds raised and period within two days following seizures
No period, no seizure
14 days after, period. Ovulation? Added Vimpat.
No seizure, no period
Seizure. No period yet but counting to 14....Ovulation?
All seizures also occurred shortly after eating but I haven't been able to find a common food.
Like all you wonderful ladies, getting help from the doctor is near impossible. I've brought up my concerns and I know the most important part is getting control of the seizures. I feel like I'm being treated as a cookie cutter case. Just a number after the number ahead of me. That because this is how the doctor has treated patients with seizures, epileptic or not, that this is the only way to treat them. Not working with any patient based on their unique situation. Saying it's epilepsy although there's no family history our previous trauma of any kind. Not willing to do any tests other than the first big three because 'you only get those three tests'. How is that? I don't like these meds. They make everything feel flat/two dimensional/fake. Knowing someone but not remembering how you know them and what relationship you share. Alice in wonderland moments. Searching for words. Anxious and panicky all the time waiting for the next seizure to happen but they never happen when you're waiting for them. When you think you're doing so well and that you're starting to feel like the upped meds are working and you're living again and not just existing; to get slammed back to the ground and having to start all over again. Like many of you I have small children. I also have a myriad of adult sitters and chauffeurs. No driving. No dance, swimming or gymnastics until I can drive. I feel like a burden.
Finding this thread after months of looking for some kind of connection. Some reason that this is happening do suddenly. You've all helped so much. Just reading your experiences has been a comfort. I believe that this started from when I finished nursing. That the hormones just went haywire. There's a pattern and to know that it could be a few things is fantastic.
So sorry for the run on and lack of punctuation. I am just very excited. Thanks for reading and I hope you all find a solution. I'll keep you updated.