Peri-menopause and seizures

by Jeanette
(Concrete, WA)

About 2 years ago I started having very strange "disconnect" on my right side. It was really scary. I had an MRI and there was nothing abnormal about it. I started going to a specialist and he put me on anti-seizure and anxiety medication.

I was keeping track of the "disconnect" and started noticing a pattern - it was happening approximately 2 days before my period. I went to my gynecologist and I told her what was going on and she said that when you begin peri-menopause you can actually have seizures. I did blood work to check my progesterone levels but they came back fine, but again two days before my period I had a "disconnect". I am going to give my gynecologist a call, she said that if this continues she would put me on progesterone.

I am hoping this will help. It has been two long years of wondering what in the world is wrong with me. My gynecologist actually got me in contact with a lady in my area that has had contact with a doctor in Boston that has been doing a study about seizures and peri-menopause. It was a relief to find out that I am not crazy. Hope this helps someone else out there! Also, I am only 41 years old and have been told by several people that I am too young to be in the beginning stages of menopause - apparently not.

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Jul 19, 2008
Peri-menopause and seizures
by: Wray

Hi Jeanette A drop in progesterone levels just before a period can cause seizures, and not necessarily only when starting peri-menopause. More often than not the seizures occur during the pre-menopause years. Although you say your progesterone levels were normal, they could have been 'low normal' and your oestrogen levels 'high normal', in which case this would have caused your problems.

Incidentally the average age for menopause is 51, but symptoms can start 5-10 years before. Do hope this helps. Take care Wray.

The following extract is taken from "Once a Month", one of Dr K Dalton's books available on Amazon:

"In August 1948 I came across my first case of premenstrual asthma, I had found a further case of asthma, two of epilepsy, and two of migraines that all occurred just before menstruation. They also responded successfully to progesterone. Together with Dr. Raymond Greene (brother of author Graham Greene) I continued to find more cases of PMS, and in 1953 we published in the British Medical Journal the first paper in medical literature describing the many bodily premenstrual presentations, as well as tension, and gave it the name "premenstrual syndrome. The duration of PMS varies enormously. It may last a full fourteen days, with deep depression at ovulation lasting until a sudden ending when menstrual bleeding starts, while those prone to epileptic seizures caused by PMS may find that the devastating attack is measured in minutes or hours, not days. But both are deserving of treatment. Symptoms of migraine, psychosis, hallucinations, and alcoholic bouts tend to last only a day or two and come immediately before menstruation. Symptoms are always at their worst immediately before menstruation. One of the most satisfying experiences for a doctor is to be able to diagnose and treat a woman with premenstrual epilepsy. She can be treated with progesterone and taken off all anticonvulsant tablets, with their many unpleasant side effects. Premenstrual epilepsy is often a culminating symptom, which follows gradually increasing tension and headache, so these patients do have a warning that an attack is imminent. There may also be marked weight gain, though this is not always the case. Often the final trigger factor that precipitates the attack is a long interval without food."

Oct 13, 2009
wow
by: Anonymous

I am almost 44 and had my first seizure this weekend! It scared my husband and family. I woke up to ambulance attendants over me on a stretcher in my hallway. They took me to the hospital emergency and I had a CT and blood work done. All clear. I am booked for a EEG next week. I hope it is from perimenopause and not something more serious ie epilepsy development. I have been very stressed out as I am a nursing student with 3 small children. Your story helped me feel better. I am very tired and feel "disconnected" since the event.

Oct 12, 2010
I hope I found my problem also
by: mrs fleming

I'm a 39 year old women and had a tubligation done back in 2004 after my son was born. Then on Nov 4 2004 I had my first seizure just before my period started and been having them ever since. I can't find a doctor that would tell me why I'm having them but as I reseach stuff for myself I'm beginning to think this could be what is the cause of my seizure. Could someone tell me if I'm on the right track or am I crazy? Please help.

Oct 17, 2010
wow
by: Wray

Hi there It sounds very much like a peri-menopausal problem, as you've not had them before. For more info please see our page on Peri-menopause. The stress points to it too, as progesterone levels drop sharply if stressed. At what point in your cycle did you have the seizure? As that can have a bearing on it too, although I've found if stressed they can occur at any time. From about the age of 35 our progesterone levels start dropping, as we have more and more anovulatory cycles, when no progesterone is made. Progesterone is excellent for seizures if they are hormonal in nature, please see here, here, here and here. If you should consider it please this page on How to use progesterone cream. But before you do, please read this page on Oestrogen Dominance first. I recommend between 100-200mg/day, the more severe the symptoms, the more is needed. As you are stressed you might need the higher amount to begin with. It's essential to make progesterone the dominant hormone. Take care Wray

Oct 17, 2010
I hope I found my problem also
by: Wray

Hi Mrs Fleming No you are not crazy, and it was undoubtedly the tubal ligation which has caused the problem. Although it's made out to be a benign op, it does throw our hormones into turmoil. For more info please see Tubal ligation If after reading this website you want to get it reversed, please see the Lakeshore Tubal Reversal Center website. Progesterone is excellent for seizures if hormonal in nature, please see here, here, here and here. If you should consider it please this page on How to use progesterone cream. But it's essential to read this page on Oestrogen Dominance first. I recommend between 100-200mg/day, the more severe the symptoms, the more is needed. Take care Wray

Jan 27, 2011
Seizures by my period
by: Anonymous

I have been having these events for about 1 1/2 years and to date, the only thing I have been told by the Neurologist is that they are anxiety, stress or previous trauma related. My symptoms are I get nausea, sometimes profuse vomitting, diaherra, my speech starts slurring, all my senses get off, I get a little out of it but remain concious, my teeth start to clench or chatter, my heart beats strangely, I cannot walk normal, my breathing is off, then I start to jerk and shake (mainly in my arms and head but it has happened in my legs before too). I can tell that all the muscles in my body are tightly drawn. These episodes are very, very painful. They last from 20 minutes to 3 hours. I am exhausted when they are over, feel like I have been beat up and I take several days to recover from them. I started tracking them and noticed that they ALWAYS happen either 1-2 days before, during or 1-3 days after my period. I have been dealing with a bunch of idiot doctors who will not even try hormonal therapy on me. They say that it is in my head so using hormones would be useless. I have been told that hormones cannot cause seizures - dispite what I have read on the internet. I am so frustrated and feel that I have been suffering needlessly.

Jan 28, 2011
I thought I was alone..
by: Anonymous

Hi everybody, I have had seizures since the age of nine but it has always been controlled with medication. I have had a wonderful life seizure free for a very long long time now. This is very hard on me as I was an active person.

Now that I am peri menopausal I am finding that they are no longer under control and I am finding it very hard to explain my symptoms to the doc's cuz they happen so fast, I feel they don't believe me at times. I went from being seizure free to at least 3 to 4 a month. All my mri and ct scan have been normal, I have changed meds with no success.. I am at my wits end.

Any Suggestions??

cat..

Feb 03, 2011
Seizures by my period
by: Wray

Hi there I'm amazed the neurologist says they are anxiety related, particularly as you have a pattern of the episode occurring round your period. This is known as catamenial epilepsy, and is caused by excess oestrogen in ratio to progesterone, see here, here, here, here, here and here. The following is taken from "Once a Month", a book by Dr K Dalton, available on Amazon...."In August 1948 I came across my first case of premenstrual asthma, I had found a further case of asthma, two of epilepsy, and two of migraines that all occurred just before menstruation. They also responded successfully to progesterone..... One of the most satisfying experiences for a doctor is to be able to diagnose and treat a woman with premenstrual epilepsy. She can be treated with progesterone and taken off all anticonvulsant tablets, with their many unpleasant side effects." That's 63 years ago she was using progesterone for epilepsy! You can understand my amazement at the neurologist. So it's not in your head, it is hormonal. If you should consider using progesterone, please make sure it's sufficient. I recommend 100-200mg/day, please see the page on How to use progesterone for more info. Dr Dalton would initially give a 50mg injection, then "progesterone suppositories, which could be inserted rectally or vaginally and used instead of frequent intramuscular injections.... It was soon established that suppositories needed to be given at least twice daily for any beneficial effect, and that at least two hours were needed between insertions. The maximum effect of each suppository appeared to be 400 mg and lasted for an average of eight to eighteen hours, so the minimum dose of suppositories was 400 mg twice daily." Please see our page on Oestrogen Dominance before you try it. Take care Wray

Feb 03, 2011
I thought I was alone..
by: Wray

Hi Cat Was there a pattern in your seizures, ie did they occur around your period? If so they could be hormonal. Peri-menopause is a difficult time, our cycle becomes very erratic. So it could well be your seizures are hormonal in nature as they are now occurring again. Oestrogen is high in peri-menopause, whereas progesterone is low. In case they were related to your cycle, please see these papers here, here, here, here, here and here. Another thing to consider is vitamin D, a lack of this causes seizures, plus seizure medication destroys vitamin D, has anyone checked your level over all those years? It could be it's low after years of meds. See here, here, here, here, here and here. If you think it could be related to low progesterone, and you consider trying it, please read this page on Oestrogen Dominance first. If you think it's vitamin D related please see the Vitamin D council website for more info. Take care Wray

Feb 04, 2011
Dr name ?
by: Cat

Hi Everybody, this is very interesting as I have felt the exact same way. Would you happen to have the name of the doctor in Boston who has done some study on peri menopause and seizures. At this point I am so desperate I will try anything. I want to live an very normal life and not worry about having seizures.

Feb 20, 2011
Dr name ?
by: Wray

Hi Cat I can't help you, but if you do find out, please let us know. Take care Wray

Feb 24, 2011
I am not alone and its great
by: teresa

i just got thru with an eeg and veg ,,, yes i have seizures and no its not epilespy but they say its stress or trauma ,,, i have had a normal life and childhood. Than they started shoving papers at me wanting me to see a therapist, and a behaviorhal one at that,wrong move. I am not crazy and I have a computer. A wonderful tool they didnt have in my mothers day.

For over three years I have been dealing with these "events" too. they have not called them seizures. I have lost my license, two jobs and feels like my sanity some days. Then when the doctors said I am having seizures, they were because of stress or trauma. I did go nuts and I did not care. I have been confused, like most of you, massive headaches, can not speak (I have it in my head but can't get it out), in a constant fog, my memory is shot, i go from one room to another and just stand forget why i am there, can't finish a task, light headed, dizzy, and all of this is on a good day. During a seizure without my meds (I take topamax and vimpat) i shake, stare, don't speak, go limp, and incoherent for several minutes.

The thing i have noticed however that is different is i have never had a normal cycle, and when it is time for mine cycle it does get worse.

I am so glad i have found that i am not alone, and i may have what is causing my seizures. Now i have something to take back to my neuroligist, when i see him and have a piece of mind that i am not alone.

Is there any way to contact each other so we can keep in touch ?? and see how we are doing.

Mar 10, 2011
Hugs kisses and thanks!
by: Anonymous

Thank you so much for posting this. I started having seizures at 43. Suddenly - at night (early a.m.) always right before my period. After 2 I realized this and mentioned to the docs. We were also dealing with my asthma which had suddenly come back from childhood. They did not recognize either of these as a reason for the seizures, nor was there any physical prob. with eeg and scans with dye. I suspected an oxygen problem/stroke. My O2 levels were low, but no evidence of any damage or probs.

Suddenly a few months ago (at 46) I get the feeling I'll have no more seizures - I'm not sure why. My asthma went away again. The morning fuzzouts or partial seizures seem to have stopped. Maybe that's why.The scared anticipation of the next seizure just went away. Last month the hot flashes started. I'm printing your article for the doc.

Mar 22, 2011
I am not alone and its great
by: Wray

Hi Teresa I wouldn't say you were crazy, apart from seizures and headaches, I had all those symptoms you mention. All gone now, thanks to progesterone. I do hope you come right too. The irregular cycle points to a lack of progesterone too. And if you are not in peri-menopause, progesterone can help regulate the cycle. Please have a vitamin D test done too, seizure meds reduce the level, and a lack of vitamin D can cause seizures. For more info on this see the Vitamin D council and GrassrootsHealth websites. Take care Wray

Mar 22, 2011
Hugs kisses and thanks!
by: Wray

Hi there I do hope the doc takes notice! Please read those links I gave above on the effect low progesterone and vitamin D has on seizures. Both these also help asthma too, see here, and here and here. Please consider having a vitamin D test done, see the Vitamin D council and GrassrootsHealth websites. The reason your asthma went away again a few months ago, was summer. We make vitamin D during the summer months, not in winter. Take care Wray

Mar 25, 2011
Tubal Reversal
by: Tubal Reversal

Hello,
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The site also discuss the daily normal issues of women.Do not forget to tell the good things with your friends.
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Mar 25, 2011
Evening Primrose oil
by: Cat

Hi everybody, just wondering if anybody has heard of Evening Primrose Oil. Its a nature remady to help with hot flashes and menopause. I have done some reading on it and have read that it can cause
seizures.. Has anybody tried it?

Aug 24, 2011
Seizures started at 45 year old
by: Anonymous

Hi. I just happen to come across this. I am now 60. At 45 I started having seizures. I knew something was wrong with me, but didn't know what. The Dr. said I was hypoglcemic and thought I was pre diabetic. I had 2 grand mal seizures. One 1 day prior to my period and the other 4 months later 2 days before my period. I had been feeling odd at times prior to that, but could not put my finger on a cause. I really went through a very difficult time for years. Today at 60 I'm still on medication. I had my period til I was 58 years old. I take phenytoin. Once in awhile I still have odd sensations. They tried to wean me from the phenytoin but could not. Just wanted to share.

Oct 26, 2011
finally!
by: Heidi

Been looking to see if this is happening to anyone else for 2 or 3 years now...before all I found was the reverse, where an epileptic was suddenly NOT due to menopause. Sometimes I do black out but more often I just have the aura; a strange taste in my mouth and the not being able to speak thing (I like how she put it, "it's in my head but I can't get it out"). I started with a neurologist and she just wanted to diagnose me epileptic; made me VERY angry to have a doctor disregard what I was saying. Then I tried 2 different endocrinologists...one of them (without knowing why) just blindly gave me the progesterone cream I wanted only because I told him to, and the other just sat there and kept saying "huh...interesting...I've never heard of that before", etc. I go to a woman's center now and the doctor there is very interested in getting to the bottom of it all, thank goodness. I'm on progesterone therapy right now but it's not 100% effective as I still have the partial seizures about once a month, give or take. It's very depressing but I hope to see it taper off and finally cease (as it did from 2004-2009) forever. I'll be celebrating my 50th birthday next week...just throwing that in there.
Instinctively, I KNEW I wasn't alone but it sure is good to have proof!!!

Nov 28, 2011
Seizures started at 45 year old
by: Wraa

Hi there Thanks for sharing this. Please have a vitamin D test done, as you can see from the papers I've given above, it's often a cause of seizures. And please consider progesterone too. Take care Wray

Nov 28, 2011
finally!
by: Wray

Hi Heidi I'm so pleased you finally realised others have the same problems, with their doctors too! I do hope you're using enough progesterone, and that it's not oral progesterone. This is the least effective Delivery system. And please have a vitamin D test done too, it's such a vital nutrient, low in most of us. Take care Wray

Dec 30, 2011
Seizures at 42
by: Kim

For the past month I have been going to the ER and doctors because of seizures and seizure like activity that have interfered with my job and everyday life. I have been keeping track of events and surrounding conditions on a calendar for my neurologist. I noticed my periods are getting closer together and my worst incident have been right before. I pointed it out to my general practitioner and had my hormone levels tested... Normal!! I am still waiting to get into my gyn since I haven't been in a while, I am considered a new patient.
I am wheat intolerant so I will have to get my vitamin D levels checked. Thanks for the idea.
I was relieved to hear other people have similar experiences. No one has reassured me of that, everyone listens to me and asks if I am stressed. Of course I am now! Still looking for answers!

Jan 02, 2012
thank you..
by: Anonymous

Hi Jennette, as you probably read I am having the same problems. Can you supply me with the name of the doc in boston.. Cathy

Jan 04, 2012
Seizures at 42
by: Wray

Hi Kim I love your remark about everyone asking if you're stressed. It's hardly surprising! Unfortunately when hormones are checked the ratio very rarely is, this is the critical factor, not the amount. We've found from Saliva Tests a naturopath runs for us, that the ratio of P:E2 should be 600:1 and over to feel well. If you have your results please check this. And please have that vitamin D test done soon, most of us have far too low a level. You might consider using progesterone too, it begins dropping from about age 35, as anovulatory cycles begin. It sounds as if you're in the early stages of Peri-menopause. This page gives info on how to use progesterone. Take care Wray

Jan 25, 2012
sounds like me!
by: carla

hi, so many of these stories sound like mine. I had a seizure almost two years ago. I woke up in the hospital and had no idea what was going on, i am about to turn 49. After being taken off dilantin two months later i had the same thing happen. I was sent home and had another one an hour after i was sent home, both incidents were two days before my period, which i pointed out to my drs. They dismissed the possibility of the two being connected. Now my cycle is pretty irregular and i have been feeling terrible again, i am sure the seizures are related to menopause. Reading this helps me feel better already, going to follow thru with my female dr. I have had terrible experiences with drs. Its been a nightmare!

Jan 26, 2012
sounds like me!
by: Wray

Hi Carla Please read the papers I gave to Cat on Feb 3rd, and if you have problems with your doctors again, please print them out as evidence that a drop in progesterone can cause seizures. The vitamin D too, as that has a bearing on them. In fact please have a test done. For more info on vitamin D levels, testing etc see the Vitamin D Council, GrassrootsHealth, Birmingham Hospital and Vitamin D Links websites. Blood levels should be 70-100ng/ml or 175-250nmol/L and not the 30ng/ml or 75nmol/L most labs and doctors regard as adequate. The minimum daily dose should be 5000iu's per day, although the latest research indicates it should be 10,000iu's per day, see here. Take care Wray

Jan 26, 2012
sounds like me
by: carla

I just had a bunch of tests ran by my neurologist on the 20th, after my internal medicine dr. threw me out of her ofc for insisting i get a lyme disease test, my vitamin d was at 34, thanks so much for your quick response and all the information. The stress of no answers is as bad as the condition! I will bring the papers with me to my appt with my new np that i switched to after my last nightmare experience. This site is a godsend to me!

Jan 26, 2012
sounds like me
by: Wray

Hi Carla I'm glad it's been of help! And please get your vitamin D level up to a minimum of 50ng/ml, better if it's in the 70-100ng/ml range. Knowing how long it took me taking 5000iu's per day, I suggest you take 10,000iu's for a month, before dropping to the 5000iu's. Then have a test done after 3 months to see how high it's got. It's best to have them regularly every 6 months, as stress in particular drops levels, and it seems you've had more than you fair share of it! Let us know you you get on. Take care Wray

Feb 20, 2012
God Bless You for this Web-Site, I Now Feel Normal
by: Debi

I was 39 years old when I had a tubal-ligation. With-in two months of having it I was diagnosed with low thyroid and put on Synthroid. Within a month of that I had a seizure. Since that time I have had seizures off and on for eleven years. They have all happened just when my period is about to start.
I have questioned three neurologists, several G.P.'s about whether the seizure were happening due to hormones. They claimed it was "impossible". I have had EEG's, MRI's, and CAT scans done which all have come out normal. I am now seeing a holistic doctor that is more agreeable. However, she is wanting to put me on estrogen as well as progesterone. I don't understand the point. Although, I must say I am menopausal. I have only had two periods in the last year and prior to that I was having my period every two weeks. The only other physical 'symptoms' I am experiencing are hot flashes and headaches... but generally only at night. Other than the seizures. I do divide my doses of progesterone. I do get very nervous and I cry at commercials and silly things like that as well.
I would appreciate your input. And again, God Bless you for this web-site. It has take me a very long time to find a long list of women who have the same type of problem. I now know this is a medical issue that really should be addressed.
Also, for those who are interested there is a Doctor, Ray Peat, who, if you Google his name has a lot of info on progesterone and seizures. Another doctor, could be the one in Boston, Russell Blaylock. Although, there is a doctor at one of the Boston Research Hospitals that his first name begins with Andrew. There is another doctor who does a lot of research on epilepsy and progesterone whose last name is Herzog. I can't recall his first name. Could be the same man. Obviously, I am going by memory here. If I find this info I will post it. Hope it is helpful.

Feb 21, 2012
Thanks for posting
by: Heidi

Just glad to see this thread is still alive, and to know there are even more connections to be made between seizures and hormones. I'm still having my seizures but they have lessened in severity with progesterone. Still, once a month whether I'm ready or not! No periods though. I turned 50 November of 2011. Can't help thinking it'll all be over when the hormones stop fluctuating. Just makes me feel so much better to know it's not just me. Hang in there with me! Life sure does just keep right on going.

Feb 22, 2012
God Bless You for this Web-Site, I Now Feel Normal
by: Wray

Hi Debi It is amazing how so little is known about catemenial epilepsy, or that which occurs during Peri-menopause, usually the tail end. I've actually just done a web page on this topic, as so many women suffer from them needlessly, see here. There are plenty of papers you can take to your doctors if need be. I do recommend a vitamin D test, as a low level of this is implicated in seizures. You don't say how much progesterone you are using, but it appears too little if you are have hot flushes, headaches and are very emotional. I have just finished a page on Hot Flushes too. I normally recommend 100-200mg/day, more if symptoms are severe. Ray Peat is amazing, I have often referred to his site, a wealth of info, plus I give links to his pages. This is the link to his epilepsy page in case others are interested, see here. You only have to read through it to see you do not need any oestrogen! Russell Blaylock has written an excellent book on excitotoxicity. Please let me know how much progesterone you are using and in what form too. You might like to read our page on Peri-menopause. It gives more info on how to use the cream. I'm sorry you had the Tubal ligation, as it can cause problems. Thanks for the kind words about the site! Take care Wray

Feb 22, 2012
Thanks for posting
by: Wray

Hi Heidi Good to see you on the page again. I would ask you to increase the amount of progesterone you're using, you don't say how much. But you shouldn't still have seizures. And did you have the vitamin D test done? I have written a page on Epilepsy now, it gives info on vitamin D too. Take care Wray

Apr 10, 2012
Seizures and peri-menopause
by: Anonymous

Thank you so much for your commentary. I have been having random nocturnal seizures and even work in the field of animal medicine. Didn't know that hormone imbalances can cause seizures. read your article and realized the connection to my menses. Thanks!

Apr 13, 2012
Seizures and peri-menopause
by: Wray

Hi there I'm pleased the epilepsy page helped you. Hormones are more often than not overlooked if seizures occur. Take care Wray

Jun 20, 2012
perimenopause and seizures
by: Anonymous

I can't believe other women have had some of these symptoms. I have been going through perimenopause sence i was 42. I am now 50. In the last 4 months i have had 2 nocturnal seizures. I have been to two different er's and had all tests done. They gave me anxiety pills and said rest. The dr told my husband they did not know if i had really had a seizure or not. I woke my husband up both time gasping for air and shacking and blood coming out of my mouth where i had bit my tongue. I'm afraid to goto sleep at nite and my husband stays awake to watch me. Any advice please help.

Jun 21, 2012
perimenopause and seizures
by: Wray

Hi there I'm sorry you've been through this, and the apparent indifference of your doctors. If the anxiety pills they've given you are benzos please get off them immediately, they are highly addictive. There are many nutrients which help Anxiety, are you in fact anxious? I mean were you before the seizures, obviously those would make you so. I have never heard of anxiety causing seizures, panic attacks yes, but not seizures. Please read through our page on Epilepsy, it might give you some clues. And the page on anxiety to see if they are panic attacks. In both cases progesterone does help, although for seizures you will need at least 400mg/day if not 500mg/day progesterone. Panic attacks respond to less. As you're in the last years of Peri-menopause please read through this page. And you might like to read our page on Menopause too. The two seizures you've had, did they follow a particular phase in your monthly cycle, it would help to know this. Take care Wray

Jun 22, 2012
seizures and menopause
by: Anonymous

Thanks Wray for your advice. The first seizure happened in Jan.,I went 316 days without a period. For two weeks before that my breast became extremely sore. I had a panick attack in my sleep and one when i woke up 2:30 am. Shortly after that is when i had my first seizure. The same morning. About three weeks ago my breast started to get sore again but nothing like the first time. Two weeks ago i awoke my husband up having another seizure. A week later I started having panick attacks. They lasted four days. Also, before all of this starts to happen I will have some really bad night sweats and heart palpatations. Sarah

Jun 25, 2012
seizures and menopause
by: Wray

Hi Sarah It's very apparent you are having a surge of oestrogen each time, ie your ovaries have not yet stopped producing it. But you will not be ovulating at all, which means there is nothing at all to counter this sudden rise in oestrogen. I've found the worst possible symptoms occur when there is no progesterone available. For instance this often happens to women at ovulation when they can get migraines, panic attacks, heart palpitations, seizures, and asthma attacks. Oestrogen rises exponentially about 50 hours prior to ovulation. Progesterone should too, the surge has nothing to do with ovulation and comes from the brain, see here, here, here and here. But if this surge does not take place, oestrogen badly affects the women. The other time these extreme symptoms occur are in the last few months of peri-menopause, when ovulation has ceased. For instance your Breast Tenderness is caused by oestrogen, it's an excitatory, inflammatory hormone, and also causes water retention. I gave you the pages on anxiety and seizures which explain those. We also have a page on Hot Flushes too. Continued below.

Jun 25, 2012
seizures and menopause Part 2
by: Wray

Hi Sarah I need to do a page on heart palpitations too as so many women get them. Understandably as oestrogen causes prolongation of the QT interval, which results in palpitations, arrhythmia and Torsades de Pointes. Whereas progesterone shortens the QT interval, see here, here, here, here, here, here and here. If you do decide to try progesterone please use sufficient, although I recommend 100-200mg/day, I feel you'll need at least 200mg/day if not more to begin with. There's info on all the pages I've given you on how to use it. Take care Wray


Sep 05, 2012
perimenopause allergies/seizures
by: Mary

Since I started perimenopause I have been having a
lot of food allergies but the strange this is I always feel like I am fading and my throat feels tight and of course I panic so I am sure that do not help, But I cannot not help being afraid. I usually take benedryal but sometimes it do not help. HELP HELP HELP anyone ever had these problems? I have not had a cycle in 8mo.I am 52yrs
old and so scared

Sep 06, 2012
Throat Feels like it is closing up.
by: Sarah

GOOD Morning Mary, i have the very same problem. I have not had a period for over 205 days. The week before what I think is my period week I start having the feeling that I cannot swallow or I'm going to choke. I take extra calcium and that helps me a little. Sorry I have no real solution for you, but just know you are not alone. I am 50 and have been goinging through this for the last 8 years. It has felt like a life time of hell. It does help to know that others are going through some of the same symptons. Good Luck and heres to better days. Sarah

Sep 06, 2012
perimenopause allergies/seizures
by: Wray

Hi Mary Oestrogen can make us more sensitive to allergens. It's an excitatory, inflammatory hormone which increases mast cell secretions. Progesterone on the other hand inhibits them, see here here and here. Oestrogen also causes smooth muscle to contract, progesterone to relax, hence your tight throat. It appears you are not using enough progesterone, so it's stimulating oestrogen. For more info see our page on Oestrogen Dominance. I recommend 100-200mg/day, more if symptoms are severe. We do have a page on Peri-menopause, and as you are nearing menopause, please see our page on Menopause. Take care Wray

Sep 07, 2012
Progesterone
by: Sarah

Does any one know why progesterone cream makes me very nervous. I have tried it three different times and I start having thoughts of suicide. I stopped using it two years ago and I have not had these thoughts again. I do have panick attacks and anxiety once a month even though I have not had a period in 210 days.

Sep 08, 2012
Progesterone
by: Wray

Hi Sarah It appears you were using a very low amount, possibly 20mg/day? I've found it needs to be at least 100-200mg/day to help. Often more is needed, particularly if you have Anxiety and panic attacks. Progesterone is excellent for both these. The page also lists other nutrients which help too. For instance the B vitamin inositol is also excellent, see here, here and here. As you are now in Peri-menopause, or possibly Menopause you might like to look through these pages too. And if you should consider using progesterone again, please see our page on Oestrogen Dominance too. Take care Wray

Oct 17, 2012
Really Young
by: Erica

I am only 29 but I have started to have hot flashes and after a hot flash I have a seizure. The doctors did EEGs and an MRI they both came out normal. They put me on 5 different meds and nothing has seemed to help. I felt like I had hit a brick wall. I asked many times, "Can this be female related because I have a hot flash before and I am really to young to be going through menopause?" I was brushed off and told that was not likely. I am so glad I found this page. This may not be my problem but maybe it will lead me over this brick wall I have seem to have hit. Thank you.

Oct 18, 2012
Really Young
by: Wray

Hi Erica Do you know when in your cycle you get the hot flush followed by the seizure? To my mind both are very evidently hormone related. Progesterone can help seizures, please see our page on Epilepsy. There are a number of nutrients which can help too, all listed on the page. We also have a page on Hot Flushes too. The evidence points to excess oestrogen for these, and although there aren't any studies, oestrogen is probably involved in the seizures too. A drop in progesterone can cause them. This drop skews the ratio of progesterone to oestrogen. Oestrogen is an inflammatory hormone, plus it increases glutamate release in the brain, see here. Glutamate is our most excitatory neurotransmitter. Progesterone suppresses the glutamate response, see here. A lack of vitamin D can cause seizures too, see here, here, here,
here, here and here. Please have a test done. For more info on vitamin D levels, test kits etc see the Vitamin D Council, GrassrootsHealth and Birmingham Hospital. Blood levels should be 70-100ng/ml (175-250nmol/L) and not the 30ng/ml (75nmol/L) most labs and doctors regard as adequate. The minimum daily dose should be 5000iu's per day, although recent research indicates it should be 10,000iu's per day, see here. If you should consider using progesterone, please use sufficient, I recommend 100-200mg/day, sometimes more is needed. We do have more info on our page How to use progesterone cream. Take care Wray

Oct 19, 2012
the lack of knowledge doctors have about peri-menopause and menopause/and seizures Showed all of them an article about this but no answers these were new onset not as a younger adult.
by: Anonymous

I would like to be able to help others, I wish hormonal studies would have been done at peri-menopause and menopause on me. I agree stress, lack of sleep and other menopause symptoms add to problems but new onset seizures which at first I didn't recognize, the first neurologist wasn't sure but brought the word up( seizure] her demeanor was horrible, I fainted at work no grand mal seizure, by the time I was going to the ER I was awake. One episode I recognized with my husband and friend , words did not come out of my mouth correctly. The other was a shifting of my eyes when driving, by the time I got home went about my day,but remember I was already plagued by every day menopausal symptoms Just trying to survive like other women who suffer. This all happened over a 2 year period but by Labor Day of 2011, I had a grand mal seizure with 3 days in the hospital now on medication for over a year now. I would have liked more help from physicians. This new neurologist contemplated taking me off some of the medication when I asked for this but said "You don't want to have seizures. " I hope some day , some doctor will take the time to study these issues with women, especially, when it comes to seizures. I might have one hormone level taken by gyn doctor but the timing of the hormone I was on not the right time. I come to the conclusion if women have a strange cycle or have started menstrual periods late or don't go through the menopause til late in life this should be looked at. Maybe in ten years or more from now, something will be in place to help ladies through this and the 12% or more who start new onset seizures at peri-menopause/menopause which has been documented.

Oct 20, 2012
the lack of knowledge doctors have about peri-menopause and menopause/and seizures
by: Wray

Hi there Very few of the medical profession take cognisance of the studies done on what is known as catamenial epilepsy. It is a recognised problem, they even have a word for it! The withdrawal of progesterone at the end of the monthly cycle causes it. Seizures can also occur around ovulation too. And of course in Peri-menopause with dropping progesterone and normal oestrogen. We do have a page on Epilepsy you could look through. Apart from progesterone there are a number of nutrients which can help too, notably the amino acids taurine and glycine. A lack of vitamin D also causes it too, see here, here, here,
here, here and here. Please have a test done. For more info on vitamin D levels, test kits etc see the Vitamin D Council, GrassrootsHealth and Birmingham Hospital. Blood levels should be 70-100ng/ml (175-250nmol/L) and not the 30ng/ml (75nmol/L) most labs and doctors regard as adequate. The minimum daily dose should be 5000iu's per day, although recent research indicates it should be 10,000iu's per day, see here. Take care Wray

Jan 31, 2013
There and back
by: Julie

I have been thru hell and back. I have MS, Auto immune hepatitis in remission and i had viral meningitis in October which caused 2 seizures. since then i went on keppra but i started stuttering so they put me on oxcarbazepine. I was doing good until jan13th when i had a seizure. Then again i had one on the 13th and i went into hosp. They did a 24 hour monitor eeg for2 days and saw nothing. I went home on 17th and had a seizure again on the 21st. They hospitalized me for5 days and did the eeg with the video and took my seizure meds away. On the 24 th i had a seizure and nothing showed on eeg. I should mention that fduring the first seizure on the 13th i got my period and following the seizure on the 24th my period started again. I am 38 and my mom started menopause at 38. The eeg shows nothing so they believe its stress and i need a therapist. I am not convinced. Do seizures from perimenopause show on the eeg? My whole life is upside down. My husband and kids r a mess. My doctors are now calling them events not seizures. PLEASE HELP!

Feb 01, 2013
allergies to food
by: Anonymous

since beginning perimenopause I have become allergic to so many food help anyone ever heard of this and my asthma has been terrible

Feb 02, 2013
There and back
by: Wray

Hi Julie How patronising to call them 'events'! If you have MS, plus another autoimmune problem, and you had meningitis, and now getting seizures, your vitamin D will be rock bottom. Please have a test done. Your progesterone will be rock bottom too, and your oestrogen high, certainly the ratio of the two will be very skewed. And it's the ratio which counts. We've found from Saliva Tests we've done, that the P:E2 ratio should be 600:1 and over to feel well. It seems to me little point in checking with an eeg, when they should be checking your hormones. The timing of your seizures is perfect. The term is catamenial epilepsy, which they should know, the ancient Greeks knew it! The definition is ........"Catamenial epilepsy is a subset of this population, which includes women of whom their seizure exacerbation is aligned with their menstrual cycle. Women with catamenial epilepsy are unusually sensitive to endogenous hormonal changes. This seizure exacerbation has a statistically significant positive correlation to serum estradiol/estrogen levels and ratios.", see here. What could be more simple than that! We do have a page on Epilepsy you could look through. 38 is very young for Menopause, are you sure you don't mean Peri-menopause? The average age for menopause is 51, with peri-M starting 5 to 10 years prior. The amino acids taurine, glycine and GABA all calm brain activity, they would certainly help. Oestrogen is an excitatory hormone, it stimulates glutamate, our most excitatory neurotransmitter, see here. It increases free radicals, plus destroying beta-endorphin neurons in the brain, these produce endorphins which promote a feeling of well being and relaxation. To counter the excess oestrogen you would need to use at least 400mg/day progesterone. Anything less will stimulate oestrogen leading to more seizures, the last thing you need. Please have a vitamin D test done, and let me know the results. And consider taking the calming amino acids too. Take care Wray

Feb 03, 2013
There and back
by: Anonymous

I went to the doctor on friday and he said that if it was catamenial seizures the seizure i had would show on the video eeg and if it was due to vitamin d the eeg would have shown abnormal brain waves and it didnt so i must have conversion disorder. He said if anseizure doesnt show up on a
The eeg its definitely conversion disorder and is not seizures but they r keeping me on seizure drugs. I am going to my primary doctor on monday. They want me to see a therapist.

Feb 03, 2013
allergies to food
by: Wray

Hi there Excess oestrogen can increase sensitivity to allergens. Oestrogen is also an inflammatory hormone, plus it constricts smooth muscle, of which there is plenty in the lungs. Progesterone relaxes smooth muscle, and is in fact helpful for asthma, see here and here. And any respiratory problems, see here, here, here, here, here, here, here, here, here and here. If you wish to consider using progesterone, please see our page on How to use progesterone cream for more info.
Continued below

Feb 03, 2013
allergies to food Part 2
by: Wray

Hi there Please have a vitamin D test done, as a lack of this reduces the benefits of progesterone, and is also vital for the lungs, see here, here, here and here. For more info on vitamin D levels, test kits etc see the Vitamin D Council, GrassrootsHealth and Birmingham Hospital. Blood levels should be 70-100ng/ml (175-250nmol/L) and not the 30ng/ml (75nmol/L) most labs and doctors regard as adequate. The minimum daily dose should be 5000iu's per day, although recent research indicates it should be 10,000iu's per day, see here. Take care Wray

Feb 03, 2013
There and back
by: Wray

Hi there I hope your doctor can help you. If not you could try progesterone. But I do suggest you have a vitamin D test anyway. Take care Wray

Feb 05, 2013
There and back
by: Julie

Well my doctor refusedntontest my vitamin d but is putting me on a vitamin d booster. I have an appt with gyn but they wont see me until march 26. I had a seizure thismorning again but i am trying to just continue my life. I have 3 kids 10, 7, 6 and dont have time for this and the doctors have written me off. Cross your fingers that booster works.

Feb 05, 2013
A Year Later
by: kim

I posted here over a year ago because I was having seizures no one knew what was wrong. It always happened around my period-right before or after. Only 1 showed up on the eeg. I was on keppra for 6 months with horrible side effects. I spent a week in the hospital for a video eeg and had what they called a few "events" because they did not show up on the eeg. Not so ironic that my period came the next day! I told my neurologist that I still experience "something" before most of my periods & she said it sounds like some kind of imbalance and can't help me with it.
I went to my gynecologist in the fall because I had another "event" the timing still the same. I was relieved to hear this dr. Say she knew what I was talking about and was suggesting progesterone but I had to get cleared from a hematologist for risk of clotting. My vitamin D is low but my dr says that's ok?! The genetic mutation MTHFR I have is a mystery as to how it affect people, but since I haven't had any blood clots like my mother I'm ok there too. My gyn said to see how I do this next month and let her know, yet she wants to see me next year. With no interventiont, how can it be any different? Still hearing questions about stress. I've never been a stressful person, but dealing with all of the doctors and hormone changes is really getting to me!!

Feb 08, 2013
There and back
by: Wray

Hi Julie Do you know how many iu's of vitamin D you were given? A boost is good, but levels drop very quickly after having it. It needs to be taken daily. You can have the test done yourself, it doesn't cost much. For more info on vitamin D levels, test kits etc see the Vitamin D Council, GrassrootsHealth and Birmingham Hospital. Blood levels should be 70-100ng/ml (175-250nmol/L) and not the 30ng/ml (75nmol/L) most labs and doctors regard as adequate. The minimum daily dose should be 5000iu's per day, although recent research indicates it should be 10,000iu's per day, see here. Take care Wray

Feb 08, 2013
A Year Later
by: Wray

Hi Kim Progesterone does not cause clotting! It actually thins blood, stops clots, atherosclerosis etc, see here and here. And here, here, here and here. And here and here. Low vitamin D is not ok, how on earth can anyone say that. That also thins blood and prevents clots, see here, here, here and here. Please have a test done, or do you know what your level is? Please consider taking it too, but above all you need progesterone, please consider using that too. There's more info on our page How to use progesterone cream. Take care Wray

Feb 13, 2013
It's driving me crazy
by: Sheila

I am so glad to see I am not the only one. I had my first seizure 3 1/2 years ago. I was 45 and was taken to the hospital. I was released with all my tests coming back normal. I had another seizure about a year later and started seeing a neuroligist regularly. I have been taking Lamotrigin ever since. I still have those moments that I'm not sure what to call them. I can usually tell when it is coming. My husband and children have witnessed several of them so they don't get so scared because they know what to expect. I usually get very confused and can't understand what they are saying to me and I talk like I'm stupid. I sometimes loose control of my bowels, but not often. After it is over I am very tired and have to lay down for a while. It usually takes a couple of days to feel better. I did not think to keep track of my moments being tied to my cycle but I will now. I Just saw my neuroligist two days ago and all he did is suggest that I go into the hospital for them to verify for sure that it is an epileptic seizure. He also suggested weening me off of Lamotrigin to see if I have a seizure. As you all probably know, life is not that simple, especially when you have kids. I have an appointment with my obgyn next month and will discuss everything I have read on this website with her. It's just hard to find the right dr. This is so frustrating and scary and it makes me feel so much better to see that I am not the only one.

Feb 16, 2013
It's driving me crazy
by: Wray

Hi Sheila No you are not alone, in fact many women develop seizures in Peri-menopause, with it's dropping progesterone levels and normal oestrogen. Oestrogen lowers the seizure threshold, but it's never checked. It's an inflammatory, excitatory hormone. It stimulates glutamate, our most excitatory neurotransmitter, see here. It increases free radicals, plus destroying beta-endorphin neurons in the brain, these produce endorphins which promote a feeling of well being and relaxation. Beta-endorphins also appear to boost the immune system, protecting against cancer, see here. This paper says "It has been shown that chronic estradiol exposure results in the destruction of greater than 60% of all beta-endorphin neurons in the arcuate nucleus .....This loss of opioid neurons is prevented by treatment with antioxidants indicating that it results from estradiol-induced formation of free radicals", see here. Whereas progesterone protects against glutamate toxicity, it also increases BDNF (brain-derived neuroptrophic factor) in itself protective, see here and here. It also protects against calcium induced excitotoxicity, see here. We do have a page on Epilepsy you could look through. Progesterone is successful at reversing them if the problem is hormonal, so please check when you get the 'episode'. I'm amazed doctors never check hormone levels to see if they have a bearing. Luckily a few do, a customer sent in this excellent link which explains the mechanism behind them, see here. You might like to read her page too, lots of info on it, see here. Good luck with the obgyn! And let us know how you get on. Take care Wray

Aug 09, 2013
not alone
by: linda

i am going throuugh the same thing and i started keepin records of mine after being put on anti seizure med but at least i know now when it happens i am 38

Jan 02, 2014
I started to cry
by: irene

I started to cry when I read these I am not crazy and I am not having mini strokes that's what the drs have been telling me , started two years ago and the one this past weekend was the worst lasted two days being in a fog not having control and right side of face droop I never went to dr because they keep saying its a T.I.A mini stroke and I know that's not what it is I am so happy I really thought I was going crazy this is great thank you so much

Jan 02, 2014
DR'S dont listen
by: Anonymous

I went to the drs and I told her about this sight and that I think this is what I am dealing with and all she will do is send me to another neurologist do all kinds of tests again that they have already done, this is so frustrating this seems to get worse every time it happens I feel like I'm going crazy and no one will help me, I worry I will miss to much work and lose my job I cant work when it feels like everything is spinning or to foggy in the head I don't know its hard to describe I just know I hate this feeling

Jan 11, 2014
Me too
by: Venus R.

On Monday of this week, Jan. 6th I "passed out on my toilet" was aware that I had done so until my 14 year old daughter told me that she was going to be late for school. Apparently I had been there for an hour with my head between my knees. After taking my kids to school, I made an appointment to see my doctor. By this time I was nauseous and had a really bad headache. I was examined by the nurse practicioner. She decided to admit me to the local hosp. for observation. The office manager drove me to the hosp. and since I knew most of the people working there it was a easy transition to the patient room. (I'm a RN at the same hospital). Upon giving my information I felt a strange "disconnected" feeling. All I remember is one of the nurses saying "She's having a seizure" and me waking up with an IV started in my left arm and no memory of any of the seizure happening. I spent two days in the hospital, with a really bad head ache, my tongue sore from where I bit it and a huge bruise on my left leg I don't know what from. I just found out today that I will be getting my drivers license taken from me for 6 months and I am very distressed about this because I am a Home Health nurse....What can I do?

Jan 20, 2014
Test came back..
by: Venus R.

hello...well you where right..my vit. D level was low, my progestrone was also low...I now think that is what caused my seizure. I am still having difficulty with the disconnecting feeling. Been having headaches every day since having the one seizure. Hate having to have my mother drive me around. Or my boss to see patients. I go wednesday to see the neurologist....I hope to get off of the Dilantin.

Jan 21, 2014
Drs
by: Anonymous

I have an app. on thurs. Jan.23 and I am worried that it will just be a waste of time,
all the Drs seem to do is send u for more tests they don't want to listen and they have already done all the regular tests its time to step outside the box and find out what this is because I am on the edge. Yesterday was another bad day just foggy and yuk it was the end of over two week period and no matter what I did nothing helped,I really can't take much more everyone around me thinks I am not really sick .

Jan 22, 2014
Not really sick
by: Venus r

I know how you feel. I saw the neurogist today which is a a 4 hour drive. She did change my medication to something not as harsh as Dilantin . I will discuss my further hormone imbalances with a gyn. So for the next 6 months I will have to have a driver drive me from patient to patient. And have my parents take me shopping or pick up my children . I've accepted my fate and will bide my time...

Jan 24, 2014
frustrated
by: Anonymous

I have went to neurologist and he was no help, I even took my Daughter and we both stressed how we think it could be related to menopause and he shrugged it off said it could be migraine headaches put me on Plavix blood thinner and wants more tests at Sunnybrook. I am so sick of Dr's not listening I had a headache when I left and now I don't know what to do I've given up on drs I think I will just try the cream and vit. D and see what happens because if I go to one more dr that don't listen I really think I will snap this has been going on for over 2 years and I have no answers I am so frustrated what am I going to do if no one listens these speels are very scary .

Feb 12, 2014
so glad I found this
by: Wanda T

I started having seizures at the age of 19. Over the course of many years of tracking my seizures, we determined it was hormonal. In 2001, dr gave me Lupron shots for a year and I didn't have any seizures. So at 32, I had a hysterectomy. I was then taken off my meds. I was seizure free for 13 years until last week when I had a nocturnal seizure. I have been under some incredible stress due to my mother just being diagnosed with bladder cancer. For the last 4-5 months, I have been having issues with falling and staying asleep (never been a problem) and hot flashes. I haven't been on HRT for approx 10 years. In the last year I have also lost 60 lbs and still need to lose another 40 lbs. The seizure just about sent me over the top so I have began searching online, because I was already aware that finding a dr with knowledge about seizures and hormones was next to impossible. Thank you for the wonderful info. I feel I need my hormone levels checked.

Feb 17, 2014
seizures at menopause
by: Anonymous

I started with these seizures at about age 43.
As stated in other comments I felt odd, a lapse in
time for a few seconds. I would often get a tingling sensation over the side of my face. Had
a grand mal seizure awhile later. All sorts of
tests, all normal. I started having great difficulty sleeping. I would wake up, heart
pounding, short of breath over and over again.
Had more tests, all normal. I was put on Dilantin
by neurologist. My gyn suspected low progesterone, but tests were normal. I have now gone through menopause and these incidents have decreased but once in awhile I still have a little
seizure activity. My neuro said I will have to stay on the seizure med my entire life. My gyn is hesitant to give me progesterone.
I do find it happens when I am stressed, tired.
Not so much now, but in the past coffee would often bring it on as would a lot of sugar. I'm not diabetic and I am overweight. It has been nearly 15 years since it began. Hope I helped
someone.

Feb 20, 2014
sleeping problem
by: Anonymous

I have been having problems when I sleep and I'm not sure if I am having spells through the night or what, I can feel all my muscles tighten almost contracted and when I wake up in the morning I feel like crap my whole body is sore and my whole day is yucky. I am almost exhausted and I got enough sleep I just don't understand it, I go to bed a little early so I can deal with this because I wake up cramped and try to loosen up and I wake up drained.

I would like to find out if it is part of pre menopause I go next week for tests they keep saying I have been having mini strokes and I really think it is something else, this has been two years of tests yet no answers lets hope they come up with something this time because they really don't listen much.

Feb 23, 2014
migraines and seizures
by: Lisa

Hi there, I am 41 and live in the UK. Since New Years Day I have been having 5-6 seizures a day. I have also suddenly started getting migraines. The seizures have been classed as non epileptic. I had a coil fitted a few years back due to gynie problems so don't have periods anymore. How can I find out if the seizures and migraine are due to peri menopause?

Feb 28, 2014
another test
by: Anonymous

Hello

I went for a brain scan yesterday and while I was there I had a so called mini stroke, they panic a little and I told them I am all right this is why I am here its not a stroke find out what it is. So having one right there is a good thing I think maybe it will show up on the scan and I may get some answers I hope, today I feel like crap drained my get up and go got up and went but if I get answers it will all be worth it.

May 21, 2014
another test ~ results?
by: Anonymous

Hello Anonymous, that sounds very hopeful (and sounds like you managed very well) the mini-strokes happening during the test. You mentioned that the test would likely show it? What did you find out?

Jun 10, 2014
Seizure disorder affected by horomonal levels
by: Anonymous

It's so comforting to read all of these posts. I was diagnosed with seizures when I entered puberty. I am 52years old and have been controlled on meds for over 25 years. Recently I found that I am having twitching in my thumb and overall not feeling great. Back and neck issues as well. I am also experiencing a lot of stress. I have had MRI and EEG most recently, all negative. Now I'm supposed to do another ambulatory take home 72 hour EEG. I am so upset to think that seizures may start again. In past 4 months my levels have drastically gone into menopausal levels. I showed epileptologist and he said it had nothing to do with anything. I don't know what to do first but I am going to look into everything everyone is suggesting and speak with my nutritionist. In your experiences Do the seizures go away once you pass the menopausal period of time?

Jul 04, 2014
looking for answers
by: started seizure action at 47

All of a sudden at age 47 had a grand mal seizure during sleep. woke up with ambulance attendance and very confused. I had noticed this seizure happened while ovulating. Two months later had 2 seizures in a row while sleeping. My husband took me to hospital and they put on Dilantin. Noticed that I started my period 2 days later.

I also had feelings of `disconnections` not knowing what these symptoms were. I feel so awful on this med. Could all of this be due to peri-menopause. Could this be due to hormones.

Please help






Jul 15, 2014
Living with seizures
by: Samantha

I started having seizures when I was just 5 yrs. old, but then they stopped till I was 16-the time that I had my first period. I've been having them ever since; that's been for about 27yrs. I found out that pms and early menopause causes them..stress and anxiety does alot too. I had to go on disability about 3 yrs. ago, because my seizures kept me from working. I used to drive about 20 yrs. ago, but was at the wheel and was by myself in the car when I had a seizure without my knowledge. I woke up about 2 inches from a tree head-on. That day I drove home, and haven't driven since. It's been hard, and I've still been having seizures to this day. Sometimes I feel so alone, and sometimes just want to cry, wondering if someday these will ever end?! I pray that all of you stop having seizures, because I don't feel like mine ever will. God only knows.

Jul 21, 2014
I have just sobbed my heart out reading this!
by: Lisa R-H (UK)

I had a brain tumour removed 7 years ago and have had no problems since until about 18months ago when I started having strange 'blips'. I've been to the doctor and he reasssured me that my bloods do not show any sign of problems in my brain and that when he looks is my eyes my brain is clear. My bloods do show that I am in the peri-menopause. My LH and FSH levels are really high but 'normal' for the peri-menopause. I have been terrified that the doctor is missing something and have asked for a referral back to the neurosurgeon who did my op as I thought I was having 'petit-mal' seizures. They are not anything like the seizures I had before I had the tumour removed as they were tonic clonic. I have been keeping a record of my odd sensations and 'blips' and they all happen in the luteal phase of my cycle, although I do not bleed every month. They are in fact much worse when I don't! I am so relieved to see that there is a correlation between peri-menopause and seizures. My doctor has been so reassuring that nothing is going on in the brain (tumour wise) but I have been so anxious and stressed about it that I have probably made things worse for myself and increased the frequency of this episodes as they usually always occur when I have stressed! This site is amazing and you would not believe how relieved I feel after having read this. I am still awaiting an appt with the neurologist but now at least I can also go armed with all this additional information. I just hope and pray that my MRI and EEG (if they do some, which I'm sure they will) are clear and like all of you these 'blips' are peri-menopause related. I can totally relate to everyone's comments about driving. I had to surrender my license for 3 years back when I had surgery etc and it was a nightmare. My husband and I decided that I should not drive until I see the I neurologist so I feel like I am back to square one and that I have totally lost my independence although I know what I am doing (not driving) is he most sensible and safest thing for everyone as I would not want this to happen when I was at the wheel! Mine tend to happen at bedtime or when I am tired or stressed. Thank you everyone for being so honest and sharing your experiences. Thanks for this site!!

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