I'm confused and scared, think I'm losing my mind and health
I posted somewhere else on the site and not sure if it was the right place or not.
I have been for years had this low shaking/tremor thing. It is now progressively getting worse and intolerable. It is now accompany's major panic and anxiety.
I have been to ER's 3 times and told it was anxiety. Been to my family doctor and told it is anxiety. I was given Paxil and have been on this for 4 yrs now. I've seen all the "ologists" and was told I had fibromyalgia, was given meds but never took those. I had ultrasounds of the abdomen, only showing a small cyst on left ovary. EKG's for chest pains, arm squeezing, numbness tingling thrpught out the body. Iam seeing a psychiatrist and says I need to stay on paxil for the anxiety.
I went and saw my OB and was told to stay on paxil as I maybe in perimenopause. This was all years ago. Things are now getting tremendously worse. The shaking/tremors are so severe I can't function right, it is hard to even walk normally. I don't appear super shaky to others I guess but I feel inside like I have Mad Cow disease!
I had a saliva test done showing low progesterone and High cortisol levels. Was put on a supplement called Pregnenalone. This made everything worse. The cortisol supplements helped and are called Seriphos and Cortisol Manager. Things got a little better after stopping the pregnenalone and taking the cortisol supplements.
They did alot of blood work and because of my symtoms they thought I have Lyme disease. I was put on certain herbal and conventional meds. Things seemed worse and then did get bad. I had blood tests for Lyme 3x and each they said was negative but said those tests are unreliable and show false negatives predominately. I was given supplements aftersupplements only to keep getting worse and not better. I have had acupuncture, chiropractic adjustments, this bio feedback therapy called the Ondamed. All for NOT. No relief. Sometimes, for a day or two, I would think things were looking brighter, only to wake up awful, yet again.
I saw a different doctor and was told to stop the cortisol supplements and was given progesterone cream. The first 4 days I seen a glimmer of hope and actually felt somewhat better. But, day 5 on the cream, I woke up like all the other years with extreme shaking where my husband can feel it shake the bed. I got super dizzy, lightheaded, and tried to eat a protein bar as it felt like I was going to pass out. Hypoglycemia? I neve had blood sugar issues before and I'm 45, no family history of it either. Very frightening. Which then just fuels the anxiety which then fuels the panic and fear. I simply can't function, hold a job, or even leave the house. Where has my life gone to?
My symptoms are many and most on the peri menopause list.
Joint aches and pains
Low progesterone/ low very low vit. D. (9)
Heavy flow menstruation/cramps/pms, 7 days long
Spider veins, easy bruising
Candida systemic chronic, probably for years, am taking Nystatin
Thin skin, dry skin early aging
Thinning hair/hair falling out, had to cut it short
Blurry vision, dry eyes
GI problems/ constipation to fluctuating diahrrea dignosed with IBS
Itchy skin comes and goes
Sore breasts cystic breasts
High cortisol levels
High iron/copper levels
Sensitivities/allergy type reactions, never had allergies ever
Times where I'm nauseous and can't eat/losing weight as I am very thin to begin with. Probably due to anxiety and panic
Incessantly crying especially during the morning and daytime. For No apparent reason
Headaches/migraines never had issues before, typical now and again headaches
Low back pains
All blood tests come back normal, so they tell me, never got paper results
I am a complete mess and seem to be spiraling downward and my husband is so confused and seems so lost as well.
I used to be so independant and self sufficient, now I'm afraid to be alone for fear of passing out or some odd thing happening. Not to mention the extreme anxiety scares me to almost being frozen and an inability to mentally function.
I upped my progesterone to 10ml from 5ml twice a day, and it did seem to help but not like the first 4 days. Im still anxious, shaking, hypoglycemic, dizzy. I called my doctor and asked if I could get a higher dosage. They are to get back to me, but they didn't think that would be good to do. I got my cream compounded and was scripted to take it as follows....
5ml from day 1-12
10ml from day 13-21
Maybe a months worth, but double dosing I will be out in weeks and not sure if they will perscribe another one now....
Oh God please let this end....I am simply losing my mind! Any suggestions/advice?
What is the comparison with 100mg/200mg. To. 5ml / 10ml? I tried reading all the information on the sight but can't seem to comprehend it all. Feeling overwhelmed and nothing sinking in. Foggy brain....
Please help, what do you all think? Is this really perimenopause?